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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1623)Comment receiving replies
I have end stage liver disease. The biggest battle has been with ascites (large volume) with weekly paracentesis. I had a T.I.P.S. done on me a couple weeks ago because of that. Unfortunately I have not seen any significant decrease in the ascites accumulation. (5 liters taken off one week later) I have gained 5 pounds in 3 days since then. Has anybody else had a similar experience with tips?
By the way, I drastically changed my diet about 6 months ago. I do not eat anything from a can or a box. I eat plenty of fruit, vegetables and drink plenty of water. I use salt alternatives to season my meals and I try to get as much protein as I can. (lost 50 pounds of muscle mass) I am really disappointed to say the least. Should I have seen immediate results or does it take time to work. I welcome any feedback on this matter.
Claude
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My understanding is that a majority, up to 80% or so,, but not all patients with liver cirrhosis who have the TIPS procedure will see a reduction in ascites. You may find some relief over time. Everybody has different experiences. I had the procedure when I was in stage 3 liver cirrhosis. My condition remained stable for about 6 months, but as I entered into end stage, I developed substantial issues with ascites, fatigue, and brain fog.
Your dietary changes are definitely a great undertaking for helping your body during this time. Walking is good to help keep up your strength. Please try to remain positive. I know it’s a challenge. Be sure to contact your liver doctor and express your concerns to them.