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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)
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@karenhope

Hi, I’m Karen Hope. I’m a nurse. Diagnosed with PMR 3 years ago. Probably had it 3 to 4 years prior when they were calling it fibromyalgia. Initial sed rate was 102, hsCRP-80. 2 months of Methotrexate brought all my numbers down but tripled my liver enzymes so I opted to discontinue along with the other side effects that terrified me. Next steps? I don’t know yet. But that relief from that pain was indescribable!!

Trying to control with diet but not doing so well. Just wanted to be in a group with people who understood

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Replies to "Hi, I’m Karen Hope. I’m a nurse. Diagnosed with PMR 3 years ago. Probably had it..."
John, Volunteer Mentor | @johnbishop | Jan 29, 2022

Hi Karen @karenhope, Welcome to Connect. Sorry to hear the Methotrexate had the bad side effects on your liver. My PMR is currently in remission but for both occurrences my rheumatologist started me on 20 mg prednisone. Took me 3 and half years to taper off the first time and I had a problem with weight gain. I was in remission for six years and it came back. My second time around only lasted 1 and half years before I was able to taper off. One of the biggest reasons I think it was easier the second time around was I changed my diet and lifestyle which sounds like you are already on your way with that.

@tsc, @alanbruce and others may have some information or suggestions to share with you.

Has your doctor or rheumatologist suggested any other treatment?

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