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Liver transplant - Let's support each other
Transplants | Last Active: Dec 15, 2024 | Replies (1623)Comment receiving replies
@marinab, Welcome to Mayo Connect. I am sorry to learn of your husbands ascites, and glad to see that his doctor is offering him a procedure to help with his quality of life while waiting for a transplant.
I am a transplant recipient and I had ascites prior to my transplant, but did not have any procedure except for paracenteses. I felt miserable, and walking became difficult and my clothes didn't fit. I had PSC (Primary Sclerosing Cholangitis) and I don't know if that particular diagnosis made a difference with my treatment.
Here is a discussion about TIPs where you lcan meet others who have had the TIPs procedure.
Liver transplant: TIPS (transjugular intrahepatic portosystemic shunt)
https://connect.mayoclinic.org/discussion/liver-transplant-2/
Marinab, Where do you live that you say that your husband's chances for a liver transplant are rare? Has he considered a living donor?
Replies to "@marinab, Welcome to Mayo Connect. I am sorry to learn of your husbands ascites, and glad..."
@rosemarya Is there any group for Cirrhosis and/or Ascites? I would love to connect there. Thank you!
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Thank you so much ! I will check out the TIPs discussion group. We live in Hong Kong - while they have excellent liver facilities, the culture here does not see living donors. And we don;t have any family who would qualify or be willing, so we are waiting patiently in line which could be a long way away as he is not on the priority just yet (in a way thankfully!). TIPs was recently recommended tohim and we are weighing up the pros and cons. Like you, his ascites is very challenging and he currently goes in every 5-6 weeks for paracenteses. He also has inguinal hernia as a result which is very uncomfortable but they say they cannot repair this until his ascites is resolved as it will only come back.