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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Liver Cancer | Last Active: 1 day ago | Replies (203)
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@tball3748

Yes I’m waiting for my next scan. I had done the gem/Cis chemo Sept - Nov then I was approved to start a targeted therapy called Pemazyre since I did the genetic testing and they found I had the FGFR2 mutation. 30% chance that this will shrink my tumor, so I figured, stay home, take a daily pill and get odds better than winning the lottery….why not, right?

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Replies to "Yes I’m waiting for my next scan. I had done the gem/Cis chemo Sept - Nov..."
tball3748 | @tball3748 | Jan 27, 2022

The side effects aren’t as bad as I read them to be (so far). Definitely more hair loss, a bit tired the first day of my 2nd cycle. Mostly very dry eyes when I get up in the morning and dry mouth. I found a FB page for other patients taking Pemazyre and got product info on eye drops and mouth spray. So far so good.

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wjdemarco | @wjdemarco | Jan 28, 2022

thanks for ,your response, for some reason I have no tumor perhaps because it was caught early but suspect that may be coming . I am on Gem/Cis since November as well, getting second opinion this week and they have me in the database for genetic trials so maybe will learn something more.

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