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Nodular sclerosing Hodgkin lymphoma (NSHL): What can I expect?

Blood Cancers & Disorders | Last Active: Apr 16 1:47pm | Replies (38)
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@hnipper1

I have had two rounds of Brentuximab vidotin of two and four cycles, and in between, 6 cycles of AVD. That shrank the lymphoma which is above the diaphragm, but it is still there! Now I have been on nivolumab for almost a year. Headed for another PET scan next week to assess progress. Where do I go from here if the tumor is still active?

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Replies to "I have had two rounds of Brentuximab vidotin of two and four cycles, and in between,..."
Colleen Young, Connect Director | @colleenyoung | Jan 30, 2022

Welcome, @hnipper1. I can imagine you're concerned about your upcoming PET scan to review changes to the lymphoma after a further year of treatment with nivolumab (Opdivo) after chemo.

You'll notice that I moved your question to this existing discussion about nodular sclerosing Hodgkin lymphoma (NSHL). I did this so you can connect with @melbishop @hillary who have the same type of lymphoma as well as past posts from @grandpabob @mepowers and others who have had lymphoma.

Fingers crossed for the PET scan results and a good discussion about next steps with your cancer care team. When is your appointment?

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