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Erdheim Chester Disease: Anyone have this?

Blood Cancers & Disorders | Last Active: May 7, 2023 | Replies (9)
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@ecdhope

Hello, I was diagnosed in 2017 with ECD at Mayo. Are you a member of any groups on Facebook? We have a chat group on Facebook on Thursday afternoons if you are interested. Also, the ECD Global Alliance is an excellent support and resource.

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Replies to "Hello, I was diagnosed in 2017 with ECD at Mayo. Are you a member of any..."
Colleen Young, Connect Director | @colleenyoung | Jan 26, 2022

Can you talk a bit more about ECD and you? What tissues or organs are involved in your case and what symptoms are you managing?

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kellymac2011 | @kellymac2011 | Jan 29, 2022

Hi I don’t have Facebook.

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mandy1977 | @mandy1977 | May 7, 2023

Hi where can I find this support group on Facebook newly diagnosed

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