Anyone here dealing with peripheral neuropathy?
Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Anyone here dealing with peripheral neuropathy?
Interested in more discussions like this? Go to the Neuropathy Support Group.
I have PN in my right lower leg and also have stiffness and tightness across the mid foot, sometimes reaching to my big toe (especially) and other toes. I do ankle stretching exercises on a stair step every day. I’ve watched my actual ankle range of motion and I’ve come to the conclusion that the sensory information the damaged nerves are sending me is NOT accurate. Those nerves are yelling stiffness and tightness, but I actually have better range on the affected ankle, probably due to all that stretching! Massage does nothing for the feeling of tightness, compression hose is more for swelling. I really believe I am being hornswoggled by those damaged nerves. So, I try to ignore them and keep on with life!
Interesting. It goes along with what PT told me yesterday. They told me to keep doing the exercises they provided even though I don't think they are doing anything. They said that I am training my foot even though I may not be totally aware. Keep on!
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1 ReactionThanks so much!
It was the mesh that attracted me.
BTW, are these all low cost Uggs? If so, are they the same quality?
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1 ReactionThey aren't very low cost- $69.99-99.99, but well worth it- very good quality of materials and workmanship. I looked at a lot of slippers, with PN the slip-on scuff style doesn't work as they'll start to slide off without you being aware due to the numbness. You need a slipper with a stiff back for the same reason, too many shoes have soft backs that become crushed down over time, then the sliding off can happen. The non-skid sole was important as my balance is not the best. I was afraid the sheepskin-type lining would be thick and hot, but it's not, just enough for soft comfort.
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2 ReactionsHi my name is Sydney, I have Peripheral Neuropathy, Somedays go well that is to say I can forget about the discomfort. It comes back in the evening I have to remove my socks and some days I can't even put my feet under the Sheets & blankets. I feel at times like I'm walking on nails or pins and needles. The one drug which helps in a smaller way is Pregabalin at 400 mg. Which is a lot, I get dizzy and want to fall asleep. During the day I take 5 mg of Hydrocodone. I've tried oils and creams they help but they don't last very long, hours.
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1 ReactionGood evening @mayosloke417. Welcome to Connect. Thank goodness for those "somedays" when you can forget about the discomfort of (PN) Peripheral Neuropathy. I understand about the dizzyness of Pregabalin. I ended up only able to use Gabapentin at nighttime because of the dizziness if I use it during the day.
Sydney, have you visited with a specialist or other clinician to evaluate and confirm your diagnosis? Did you have a skin biopsy or do you have the results of other nerve function tests? That might be helpful as you seek other medications.
You also mentioned using topicals and found them to be a little on the short side timewise. Have you explored medical cannabis at this point? Is it available to you where you live?
How long have you had PN?
May you be safe, protected, and free of inner and outer harm.
Chris
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1 ReactionI was diagnosed with peripheral neuropathy after knee replacement surgery. I have tried PT, acupuncture, CBD oil, stimulation to my spine.
However, has anyone tried LDN for neuropathy?
Please if you have let me know.
@sikocesca, There are a few discussions where members have shared their experience with Low Dose Naltrexone (LDN).
-- Low-Dose Naltrexone for Chronic Pain: https://connect.mayoclinic.org/discussion/low-dose-naltrexone-for-chronic-pain/
-- Success with low dose naltrexone for Autoimmune disorders: https://connect.mayoclinic.org/discussion/anyone-familiar-with-low-dose-naltrexone/
-- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/
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2 ReactionsI have burning and pins and needles pain in my feet and lower legs. I wear compression socks during the day. I take duloxetine and pregabilin for the pain everyn day. At night (worst time), I take 2 to1 combo 2.5 mg of THC and CBD. It relaxes me and takes the stress off my legs and I get a good 8 hrs. sleep. My Dr. said, "Whatever works."
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1 ReactionHi, have you heard of Erythromelagia? Burning of feet, very sensitive to activity & hot weather. My feet turn red red after activity & being in the heat. Only relief so far is soaking only 5 min. In cool water. Not very common apparently .