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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 hour ago | Replies (7071)Comment receiving replies
I am sad to report that I have lost my joy in life but glad to report I have much joy in my faith. Yes I do have very bad CSS and Dysautonomia. Adrenal fatigue also - my BP will not stay up so I have to take Florinef. I live alone in Fl bc my husband is up north and not retired yet. My little grand daughters make me laugh. I walk a lot outdoors when the weather is sunny. I used to do light hand weights and leg press machine but now that makes me flare. I do stretch at home but that increases my pain too. Dental cleanings mean huge flare next two or three days. I do have Ketamine sublingual melts - it only takes 1/3rd to help reduce pain but it’s psychoactive and I must have someone at home with me. That means I have to hire someone. Ketamine does not help me go to sleep. I have a ? - Does a Whole Body Vibration Plate help Fibro pain?
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@irr4et Having joy in your faith is something to hold on tight to. Grandchildren, what a blessing! That makes me happy for you.
I was lost emotionally, physically, and behaviorally, from chronic conditions because I did not know how to treat myself or manage all the chaos that came from it. I very much relate to your flares and set backs. Also, medications aka chemicals, that I used to help my pain, ultimately enhanced my pain and made me loopy in the process. It was an absolute nightmare. A frightening place to be.
Doctors and Specialists are generally not educated in CSS treatment. The person living with chronic pain upregulation from CSS does generally not have knowledge
on how to properly manage their symptoms which is why things just get worse from deconditioning. It's a viscous cycle.
Mayo Clinic in Jacksonville, FL offers a phenominal pain rehab program that helps people just like you and I, and is designed to improve function and quality of life. How far is Jacksonville from you? Is this something you might consider?