← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion
Comment receiving replies
@irr4et

I am Terri and new to this group. Have had chronic pain for 22 years. Not sure but I suspect that a fall I had in 1981 onto a stone floor at 8 mos pregnant had a lot to do with this but no problems with pain happened until 20 years later. When Occipital Neuralgia developed on my left side. Also I was gluten intolerant and did not know it. And also had bone spurs in my neck that started causing much pain 20 Yrs after the fall which after MRI in 2001, showed nerve pinching in my neck. That became intolerable so I had micro-neuro surgery in 2007 to have them scraped away. But as is often the case, I received nerve damage from the surgery. And did not know I was in process of developing Fibromyalgia. I have been on only Lyrica for 12 years. Honestly it is amazing that I am still living in 2022. I have an extremely angry CNS. Have extreme cold weather sensitivity so I spend the winter in Fl.

Jump to this post


Replies to "I am Terri and new to this group. Have had chronic pain for 22 years. Not..."

@irr4et Hi Terrie, welcome. I'm certainly glad you are still living in 2022. You explain a pretty bumpy road that has not been easy. I'm sure being on Connect will help you learn from others, and find support along your continued journey.

A lot of what you mention lines up with a chronic pain condition called Central Sensitization Syndrome (CSS). Are you familiar with CSS? Your fibromyalgia, sensitivity to cold, an increase in nerve pain all these years later, really does line up with this condition. CSS is an overactive central nervous system, or as you state, angry CNS. Great way to describe it (I've got an angry one too).

Here is a video presentation by Dr. Sletten from the Mayo Clinic. You may find it interesting, and maybe even resonate with much of what he explains.


Terrie, how you are currently managing your pain, beyond Lyrica? What distracts you from pain and makes you laugh? Do you have an exercise regime?