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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27 8:00am | Replies (468)

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@johnbishop

Welcome June @juneh, You are not alone. I think all of us with PMR have had our ups and downs with flare ups, especially when we are first diagnosed. What helped me a lot with my first occurrence of PMR was keeping a daily log of how I felt (pain from 1 to 10, with 10 the worst) and what dose I was taking that day. Then if it was the day I planned to taper down, if I was at a 1 or 2 and not feeling too bad, I would go to the next lower dose.

Do you keep a daily log of how much pain you feel (scale of 1 to 10) and your current dose of prednisone?

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Replies to "Welcome June @juneh, You are not alone. I think all of us with PMR have had..."

Hi John...Thanks so much for your reply and encouragement! Yes, I keep a daily log of my dosage, pain from 1-10, location of pain, and vital signs. It's been very helpful in tracking the ups and downs. So, it sounds like you judge yourself about tapering up or down. That's what I'm feeling at this point if it's just a mg up or down. I like my doctor a lot and have a game plan, but sometimes it seems a little tweak one way or another might be all I need. Thanks again!