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@rosemarya

@nimalw, I think that you had a kidney transplant. And so I want to jump in with my experience.
I had a simultaneous liver and kidney transplant: 2 organs, 1 surgery, 1 donor . I also was prescribed prednisone along with my Tacrolimus and Cellcept. The prednisone dosage was gradually lowered over time, but I remained on a 5mg daily dose. After hearing so many negative comments about prednisone, I also began to ask about it. The answer to my inquiry was interesting, - and I think that it demonstrates the differences that are required for our individual medical needs. The liver team had a different opinion than the kidney team. (Yes, I have 2 transplant teams). The best answer was given by the doctor in the kidney transplant department. He said that the research, at the time, showed that 'for me' there was a benefit to staying on the low dose of prednisone. That was what I needed to hear!
For approximately 8 years I remained on 5mg daily prednisone without any complications or decreased bone changes. In 2017, during my annual evaluation, I was told that I could taper off the prednisone because of some new related research.
It can take a while for your body to adjust to a new normal 'for you' lab pattern. How long ago was your transplant? What is the opinion of your transplant nephrology team?

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Replies to "@nimalw, I think that you had a kidney transplant. And so I want to jump in..."

Hi Rosemary. Yes this also what I hear from a few who are on pred long term
My kidney transplant is now just under 4 months . Pred is the only drug that gives me side effects. I will follow the doctors advise and accept and take it as it comes
Thank you 🙏