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DiscussionTransplant anti-rejection medications. What's your advice?
Transplants | Last Active: 5 days ago | Replies (362)Comment receiving replies
Replies to "Thanks jK I shall try nagging this week!!! When I see the doctor. Hes a nice..."
@nimalw I was on prednisone for about 4.5 years and everything was very stable. Plus, it was a very small dose so the risk of taking me off it was minimal. The dose had been higher initially but over time it was reduced.
JK
@nimalw, I think that you had a kidney transplant. And so I want to jump in with my experience.
I had a simultaneous liver and kidney transplant: 2 organs, 1 surgery, 1 donor . I also was prescribed prednisone along with my Tacrolimus and Cellcept. The prednisone dosage was gradually lowered over time, but I remained on a 5mg daily dose. After hearing so many negative comments about prednisone, I also began to ask about it. The answer to my inquiry was interesting, - and I think that it demonstrates the differences that are required for our individual medical needs. The liver team had a different opinion than the kidney team. (Yes, I have 2 transplant teams). The best answer was given by the doctor in the kidney transplant department. He said that the research, at the time, showed that 'for me' there was a benefit to staying on the low dose of prednisone. That was what I needed to hear!
For approximately 8 years I remained on 5mg daily prednisone without any complications or decreased bone changes. In 2017, during my annual evaluation, I was told that I could taper off the prednisone because of some new related research.
It can take a while for your body to adjust to a new normal 'for you' lab pattern. How long ago was your transplant? What is the opinion of your transplant nephrology team?