@nimalw I did get off of prednisone. I was on a very small dose and I sort of nagged my transplant team about getting off, telling them it had turned my bones into swiss cheese. They finally relented and let me discontinue it and YAY! all was fine.

I have no idea if I had other side effects from it but I do think it has affected my bones because I now have somewhat advanced osteoporosis and my endocrinologist thought that was probably the cause for it being as bad as it is. My sister is 3 years older than I am, less active, and she only has osteopenia. I think the familial connection would suggest we would be more similar without the interference of a drug.
JK

@nimalw, certainly something to discuss with your team, as we’re all different. I’m allergic to prednisone, so was taken off of it a week after my liver transplant in August 2020. Thus far, no issues. I take 3 mg am/pm Tacrolimus and 500 mg am/pm Mycophenolate.

I hope you’re still sleeping better 💤!