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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@crepass

Thanks Sue, I thought 2x daily was written in stone (it’s on my script). I think I will cut back unless I have an exacerbation of some sort. ( I have gone to 3x daily with a flare up last summer)

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Replies to "Thanks Sue, I thought 2x daily was written in stone (it’s on my script). I think..."
Sue, Volunteer Mentor | @sueinmn | Jan 20, 2022

Actually, nothing about MAC is written in stone, we are all different. My personal schedule varies with the season, my general health, and how easily I am moving the mucus. Truthfully, if I get a coughing spell while nebbing, and bring up a ton of mucus, sometimes I even quit before the 4ml is completely gone. So far this program works for me.
Sue

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