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DiscussionClofazimine for MAC: Anyone have experience with this drug?
MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)Comment receiving replies
Replies to "How many times a day do you nebulize with 7% Saline? And how much? It doesn't..."
The protocol is to neb 4ml 2x daily of preferably 7% but if that amount of saline is not tolerated by our lungs then 3% or even .9% (less than one %, the normal saline amount in body fluids).
Instead of clear mucus which everyone has in their healthy airways, we have sputum which is mucus plus enzymes and various other stuff the body produces to fight our disease. Sputum is thicker and stickier than mucus and gets stuck in our compromised airways.
Ntm's, like MAC, and other bacteria, like pseudomonas, and fungi are living organisms and need food to grow. In people with healthy lungs, these organisms are breathed in and out again. But where there is sputum, the organisms move in and feed on it. Saturating the sputum loosens it up and airway clearance methods such as huff breathing, aerobika, position draining, percussion vest, etc are done after the nebbing to get as much as possible of the sputum out.
The bottom line is the less sputum we have in our airways the less a feast for unwanted guests.
I nebulize 4 ml per session, 5 times a week. I increase if I have a cough, tightness in my chest, etc to daily or twice daily. In addition I use Mucinex and NAC, 600 mg twice daily to thin mucus and I drink a lot of water and herbal tea.
I hope others will tell you their routines, as they vary a lot.
Sue