← Return to Starting MAC treatment with "big three" drugs: What to expect?

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@msk

Thank you for responding to my post. I started this journey with Mac in 2018. I have nodular bronchiectasis and my sputum cultures are positive for avium-intracellulare . I have my labs done at lab corp in asheville . Currently my symptoms are getting worst and my ct showing mac in both lungs.
My Mac infection is due to structural damage to my lungs due radiation. I had stage 4 neck cancer. My issues started after my treatments. I am 5 years out.
My symptoms are why treatment is recommended. I will discuss with my doctor to send my labs to njh to check for colony count. Don’t know if lab corp could do it. They did dna test to identify and susceptibility. Maybe they can do colony count. This is difficult but after my cancer i have to do everything i can to have quality of life. I know the risk and also that it may not work. Reinfection for my type is high. Can’t worry about that now. I place everything in God’s hand and pray that it works.
I appreciate everyone thoughts. Its good to hear what others have gone through. Will keep you updated. Thank you again. Miriam

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Replies to "Thank you for responding to my post. I started this journey with Mac in 2018. I..."

I am so sorry you are having a difficult time. My sister is just finishing her treatment for Head and Neck/Esophageal cancer and they saw MAC on the PET scan. I wish you the best and I will be praying for you!