Thanks for the further info. There are parts of CSS that definitely sound accurate to what I experience. But my guess is that FND, CSS, Fibro, etc...all cross and intersect causing blurred lines. And I'm not sure how important it is to nail down a diagnosis, once the major treatable players are ruled out (MS/Parkinsons etc..). They all seem to be psychosomatic in nature, making treatment plans very similar,( and vague!)
When I look up CSS, it seems to focus a lot on pain...which I do not have a lot of...knock on wood. What are your thoughts on that? I have burning feet, weakness, tremor, and everything else I mentioned...but not pain. Having said this, I do believe my CNS is overreacting to basic stimuli, (foot touching sock, pant touching leg etc... resulting in neuropathy).
My discharge papers after being diagnosed with FND were a follow-up with a psychologist, psychiatrist, and to review 2 websites that had info on FND. Pretty underwhelming I would say considering how hard I worked to get into MGH and their FND specialty department.
I believe my body is in over-protection mode...stuck in some sort of fight/flight. Trauma-based response. For instance, I've lived in hockey rinks my whole life, and suddenly I have a startle response to pucks hitting the glass etc... Never happened before.
And so while I am always managing symptoms, I believe this is my body's way of telling me there is underlying stressors but at the subconscious level, which is what makes the vastness and unpredictable nature of my symptoms so frustrating.