← Return to Clofazimine for MAC: Anyone have experience with this drug?

Discussion
Comment receiving replies
@sueinmn

Pretty common, I think. Over 2 years ago, at age 68, not 88, with my doctors ' blessing, and consultation with NJH, I quit.

Actually, switched from antibiotics to daily 7% saline and airway clearance even though I still had a positive culture because the side effects were making me miserable. So far, I have recovered 80% of my lost weight and energy, and had only one exacerbation, treated with steroids and a short course of antibiotics.

Pretty sure the MAC is still there, but it's staying quiet. So, I understand exactly how she feels, And if she was my Mom, I would support her decision.

How do you feel about letting her try it for 6 months? And what do the doctors say.?

Sue

Jump to this post


Replies to "Pretty common, I think. Over 2 years ago, at age 68, not 88, with my doctors..."

How many times a day do you nebulize with 7% Saline? And how much? It doesn't take long for me to nebulize. Says to use 4MLS. Is one vial per session enough?