← Return to Clofazimine for MAC: Anyone have experience with this drug?
DiscussionClofazimine for MAC: Anyone have experience with this drug?
MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)Comment receiving replies
Replies to "Hi Sue, she sees an ID doctor who does treat Mac but she is probably his..."
Pretty common, I think. Over 2 years ago, at age 68, not 88, with my doctors ' blessing, and consultation with NJH, I quit.
Actually, switched from antibiotics to daily 7% saline and airway clearance even though I still had a positive culture because the side effects were making me miserable. So far, I have recovered 80% of my lost weight and energy, and had only one exacerbation, treated with steroids and a short course of antibiotics.
Pretty sure the MAC is still there, but it's staying quiet. So, I understand exactly how she feels, And if she was my Mom, I would support her decision.
How do you feel about letting her try it for 6 months? And what do the doctors say.?
Sue