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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@garry

Nothing else seems to work. I was also scared that the mac would get resitance to arithromycin. I use to be on 1 a day and then he went to 500 every third day. I still do the salt morning and night. I have gone a month without anything thinking i will beat this mac shit and then i can feel my spots again. One dr ask my wife if I was nuts and she said yes. My dr is good he lets me do my own thing. Mac does not show up in a chest xray.

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Replies to "Nothing else seems to work. I was also scared that the mac would get resitance to..."
Sue, Volunteer Mentor | @sueinmn | Jan 18, 2022

So Garry, I'm going to ask a few questions here - I apologize if it's too much, but it might help get you some better answers.
If it doesn't show up on an xray, how did you learn that you have MAC? Did it show up in your sputum culture? And are you seeing a pulmonologist, or is your primary doc treating you for this?

Sue

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