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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@sueinmn

I have a few questions about your Mom's treatment. Adding more meds to the regimen when she is already suffering so many side effects seems extreme.
Is she being treated by an Infectious disease specialist experienced in dealing with MAC specifically in older patients? Are they adding meds because her infection is worse (as shown by sputum culture or CT) or replacing the difficult to tolerate ones?
How does your Mom feel about continuing treatment?
Sue

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Replies to "I have a few questions about your Mom's treatment. Adding more meds to the regimen when..."
almap | @almap | Jan 18, 2022

Hi Sue, she sees an ID doctor who does treat Mac but she is probably his oldest patient. Her sputum culture was positive and last CT scan showed maybe slight improvement. My mom wants to take a break from the antibiotics. She is tired of feeling so bad from them. We have an appointment on Jan. 31st to discuss. If she starts Clofazamine I think she will insist on taking a break from azithromycin and Ethambutol. I’m not sure what the Doctor will think of that. He does collaborate with National Jewish Health in Denver. She lives outside Milwaukee, Wi and unfortunately we don’t have a MAC specialist specifically. He seems knowledgeable though and is a good communicator. Is it common for MAC patients to take a break from antibiotics?

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