← Return to Clofazimine for MAC: Anyone have experience with this drug?

Discussion

Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
Comment receiving replies
@almap

I tried to reply to you earlier, not sure what happened. My mom is on azithromycin.250/daily. Also ethambutol 400 mg/2x/day. Amikacin 3x/week . Now he also wants to start Clofazamine. She has no appetite, and her stomach is a mess. She does take probiotics but it doesn’t really help.

Jump to this post

Replies to "I tried to reply to you earlier, not sure what happened. My mom is on azithromycin.250/daily...."
Sue, Volunteer Mentor | @sueinmn | Jan 18, 2022

I have a few questions about your Mom's treatment. Adding more meds to the regimen when she is already suffering so many side effects seems extreme.
Is she being treated by an Infectious disease specialist experienced in dealing with MAC specifically in older patients? Are they adding meds because her infection is worse (as shown by sputum culture or CT) or replacing the difficult to tolerate ones?
How does your Mom feel about continuing treatment?
Sue

VIEW AND REPLY