1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

iowagal | @iowagal | Jan 14, 2022
In reply to @kathyfc "I just had my first Evenity shots yesterday in each arm. Hours later I felt itching..." + (show)
@kathyfc

I just had my first Evenity shots yesterday in each arm. Hours later I felt itching at the injection sites, as if I had bug bites. Today, I am fine. I had no swelling at all. Did your itching last long and has this happened each time you have had the injections? Thanks.

Jump to this post

I only had the site reaction this one time. Lasted several days though.

REPLY
1 reply
beverlyruth | @beverlyruth | Jan 15, 2022

I had my second series of Evenity shots, one in each arm, a few days ago. There was less soreness than I had the first month! I have ten more months to go. Overall, the final result of these injections is sore arms for a couple of days. Not too bad.

REPLY
JK | @contentandwell | Jan 16, 2022
In reply to @windyshores "ps I asked three cardiologists and two endocrinologists on Evenity versus Tymlos (I had an episode..." + (show)
@windyshores

ps I asked three cardiologists and two endocrinologists on Evenity versus Tymlos (I had an episode of afib with full dose of Tymlos) and they all had different answers. Since Tymlos is not as new, and I can follow it with Evenity, I went with my gut and started it low and kept going.

Jump to this post

@windyshores Is Evenity as costly as Tymlos? I am on Tymlos now, in my 11th month, so I do have another year to go but beginning to wonder what I will take next.
JK

REPLY
1 reply
windyshores | @windyshores | Jan 16, 2022
In reply to @contentandwell "@windyshores Is Evenity as costly as Tymlos? I am on Tymlos now, in my 11th month,..." + (show)
@contentandwell

@windyshores Is Evenity as costly as Tymlos? I am on Tymlos now, in my 11th month, so I do have another year to go but beginning to wonder what I will take next.
JK

Jump to this post

For me Evenity would be $260/month on a Medicare Advantage plan. Amgen does not have a patient assistance program but does have a foundation that can sometimes help. I get Tymlos for free through the Radius Assist program so I don't know the cost- sorry!

REPLY
iowagal | @iowagal | Jan 17, 2022
In reply to @iowagal "I only had the site reaction this one time. Lasted several days though." + (show)
@iowagal

I only had the site reaction this one time. Lasted several days though.

Jump to this post

Have been on Evenity 9 months. Just got a stress fracture in my foot.

REPLY
1 reply
JK | @contentandwell | Jan 17, 2022
In reply to @iowagal "Have been on Evenity 9 months. Just got a stress fracture in my foot." + (show)
@iowagal

Have been on Evenity 9 months. Just got a stress fracture in my foot.

Jump to this post

@iowagal To get a stress fracture after nine months on Evenity must be discouraging. What did your doctor say about that?
JK

REPLY
2 replies
iowagal | @iowagal | Jan 17, 2022
In reply to @contentandwell "@iowagal To get a stress fracture after nine months on Evenity must be discouraging. What did..." + (show)
@contentandwell

@iowagal To get a stress fracture after nine months on Evenity must be discouraging. What did your doctor say about that?
JK

Jump to this post

I am waiting to hear back from him. 😒

REPLY
2 replies
windyshores | @windyshores | Jan 18, 2022
In reply to @iowagal "I am waiting to hear back from him. 😒" + (show)
@iowagal

I am waiting to hear back from him. 😒

Jump to this post

Let us know!

REPLY
lillea | @lillea | Jan 18, 2022
In reply to @iowagal "I am waiting to hear back from him. 😒" + (show)
@iowagal

I am waiting to hear back from him. 😒

Jump to this post

Would be very helpful if you could give us a little info about yourself age reason for starting evenity etc.? Sorry to hear that, do you need to wear a boot?

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.