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What helps with post liver transplant fatigue?
Transplants | Last Active: Oct 4, 2022 | Replies (73)Comment receiving replies
Hi,@karenmarian2. I see that this is your first post, and so Welcome to Connect. I had my transplant, liver and kidney, in 2009. The concerns that you have mentioned like not having a primary care physician (PCP), uncontrolled diabetes, and fatigue also concern me. It is apparent that you understand the necessity of adherence to the anti rejection medications, and so does your boyfriend. That is a good thing because it shows that he does want to comply with one of the major post transplant requirements.
I am wondering whether you were with him in 2016 when he got his transplant. This could be a good opportunity to either review, or to have a talk with him about his post transplant responsibilities. When we are taking antirejection medications, there are required routine blood labs to monitor and maintain a safe level of the meds in our body. Those lab results should give the prescribing physician evidence of the uncontrolled diabetes. Who is in charge of prescribing and monitoring his medications?
How long have you been with him?
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I forgot to mention his transplant team is the only set of Dr’s he sees.
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Thank you so much for responding. I was not with him when he had his transplant. We are old childhood sweethearts. I have been in a long distance relationship with him for a year and a half. I know he is good about getting his labs done. My main concerns are I don’t think he realizes how important it is to monitor his diabetes. I have a hard time getting straight answers out of him. For example I may ask how was your reading this morning and his response is I took my insulin but didn’t check my level. I believe he is to check it 3 times a day. I don’t know if he is to take more insulin. Very confusing. I also think this may play a large part with his extreme fatigue. I’ve been after him to find a primary care physician. I don’t think he understands how vital that is. He doesn’t like to discuss his health a lot. I know if I was with him he would be feeling better due to the fact I would make sure he was following a regimen. He always brags about how healthy he always was. I told him if he was getting routine physicals all along he wouldn’t be in the position he is in. I worry constantly.