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Clofazimine for MAC: Anyone have experience with this drug?

MAC & Bronchiectasis | Last Active: Oct 13, 2023 | Replies (60)
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@garry

What about azithromycin.It is the only drug that works for me. I am on 2 every 3rd day. gm

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Replies to "What about azithromycin.It is the only drug that works for me. I am on 2 every..."
Sue, Volunteer Mentor | @sueinmn | Jan 17, 2022

Hi, is this the only drug you tolerate? If you have MAC, the reason for multi antibiotic treatment is that you take it so long the bacteria tends to become resistant to a single drug. But most doctors will tell you that if that's the best you can handle, go with it.
How long have you been taking azithromycin? Have your symptoms improved?
Sue

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almap | @almap | Jan 18, 2022

I tried to reply to you earlier, not sure what happened. My mom is on azithromycin.250/daily. Also ethambutol 400 mg/2x/day. Amikacin 3x/week . Now he also wants to start Clofazamine. She has no appetite, and her stomach is a mess. She does take probiotics but it doesn’t really help.

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Nancy C | @nac1 | Jan 18, 2022

Are you having any side effects from the drug? If so, what kind?

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angeles31 | @angeles31 | Oct 12, 2023

I experienced hearing loss from Azithromycin after taking it 3 months. My EMT doctor said it’s irreversible.
Very discouraging.

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