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What helps with post liver transplant fatigue?

Transplants | Last Active: Oct 4, 2022 | Replies (73)
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@karenmarian2

I was looking for some knowledge because my boyfriend had a liver transplant in 2016 and is still extremely fatigued. He doesn’t have a primary care physician and doesn’t like to bother his team. He is also diabetic and has neuropathy. I don’t think he’s the best at following his diabetes. He tells me he does take his anti rejection meds. I’m always worried about him. His sugar has gone up over 600 at times. I feel it’s bc of poor management. Can anyone please offer some help. Thank you. Karen

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Replies to "I was looking for some knowledge because my boyfriend had a liver transplant in 2016 and..."
Rosemary, Volunteer Mentor | @rosemarya | Jan 17, 2022

Hi,@karenmarian2. I see that this is your first post, and so Welcome to Connect. I had my transplant, liver and kidney, in 2009. The concerns that you have mentioned like not having a primary care physician (PCP), uncontrolled diabetes, and fatigue also concern me. It is apparent that you understand the necessity of adherence to the anti rejection medications, and so does your boyfriend. That is a good thing because it shows that he does want to comply with one of the major post transplant requirements.

I am wondering whether you were with him in 2016 when he got his transplant. This could be a good opportunity to either review, or to have a talk with him about his post transplant responsibilities. When we are taking antirejection medications, there are required routine blood labs to monitor and maintain a safe level of the meds in our body. Those lab results should give the prescribing physician evidence of the uncontrolled diabetes. Who is in charge of prescribing and monitoring his medications?
How long have you been with him?

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