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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
@anniepie This is Irene. I am part of the Arikayce clinical trial in the US . I started on June 8, 2020. The Panther Pharmaceutical Company supplies everything. Yes, it is a Pari e flow. You are also provided with a virtual nurse for an intensive lesson/training. There is no cost to you except for buying distilled water for sterilization. The Arikayce support is genuine and will answer any and all questions that may arise. Every month when my Medicare print out arrives, and I see almost $11,000, I am grateful to be in this trial. Good luck to you. @irene5
Replies to "@anniepie This is Irene. I am part of the Arikayce clinical trial in the US ...."
Oh wow! Irene @irene5 that is a huge cost each month.
In March I will ask my lung doctor (who is a co-author on this trial) if she knows what the timeline is likely to be for FDA approval. (And for the TGA in Australia). Drugs usually go down in price after approval and eligibility improves.
Oh I wish they would hurry up and support Aricayce better soon for when you need the drug again in future!
Heather @heathert can I ask if you know what the cost would be in New Zealand ?
Hugs to you both
Annie
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@irene5 wow that is alot of money for a month!!!!!!