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MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Replies to "Hi Heather @heathert thaks so much -- I do have some other Arikayce questions. No I'm..."
Hi @anniepie Yes the trail included a pari E flow, a fantistic machine which delivers the med quicker, but I had to give it back at the end and buy my own, for my saline use. I may have to use Arikace again if my drugs do not work this time, wonder if I can be in the trial a second time as New Zealand has not approved it yet also , and it is not cheap! All the best Heather
@anniepie This is Irene. I am part of the Arikayce clinical trial in the US . I started on June 8, 2020. The Panther Pharmaceutical Company supplies everything. Yes, it is a Pari e flow. You are also provided with a virtual nurse for an intensive lesson/training. There is no cost to you except for buying distilled water for sterilization. The Arikayce support is genuine and will answer any and all questions that may arise. Every month when my Medicare print out arrives, and I see almost $11,000, I am grateful to be in this trial. Good luck to you. @irene5