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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: Oct 23 10:20am | Replies (3405)

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@gabrielm

@tahiristan, I hadn't posted on CrowMed, at least not that I remember. This forum has definitely been the most helpful for me, since I've gotten a lot of response here. I posted on Reddit and another medical forum but didn't get much response on those years back.

I was also a big runner before all this, and I wonder if pushing ourselves too hard might have something to do with it, since I remember having a bad episode back in 2017 right after a hard run. Sorry that the breathing exercises didn't help. I noticed for me to just do as much as my body will allow and not push too hard. The Buteyko method can be tailored to the individual and the breath hold exercises can be done as little or as much as the body will allow.

Do you plan on exploring the possibility of it being psychological? My doctor recently recommended I read a book called "Breathe" by James Nestor. He said it was really interesting so I'm definitely going to pick me up a copy and see if I can learn anything from it. Maybe we just forgot how to be breathe properly, LOL.

Let me know if you get any response from CrowdMed. It'd be interesting to hear of responses from there.

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Replies to "@tahiristan, I hadn't posted on CrowMed, at least not that I remember. This forum has definitely..."

Hi Gabe,

I haven't and I don't know if I will post on CrowdMed, their fees are ridiculous and from what I have heard, all they do is give you a differential diagnosis. I am not sure if it's worth putting $300/month for how many ever months it would take for the potential diagnosis to come back.

I will try the Buteyko method. I need to find a good video on it. Do you know of one?

Yeah I have actually. Because I have Dystonia as well, I am starting to see firsthand how the mind/body connection really is.

But when my throat gets tight, it really makes me wonder. It is a physiologic issue but there is a mental component as well because sometimes when I am super focused on a task, I don't notice the issue. Not sure what that means.