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I am looking for others diagnosed with microscopic colitis

Digestive Health | Last Active: Oct 27, 2023 | Replies (198)
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@grannydee

This is interesting…gastro dr recommended 2 Zenpep (40,000) with each meal, equaling 6 per day. It gave me fibrosing colonopathy and I was in agony with the cramping and diarrhea.
I stopped after the worst episode last Friday. Started over with the Zenpep ONCE before my evening meal. So far, so good!
The recommended dosage was WAY too strong is my best guess. I have a follow up appointment in 5 days and am curious to see what my dr has to say. I was diagnosed as having moderate to severe EPI and that I needed a strong dose to be able to digest my nutrition.
The weight loss continued and now I am down to 104. I’m only 62 inches tall and there is NO way I’m taking the recommended dose!
Anyone else had a similar experience?
I can live with the smaller dosage, but I can’t live with the agonizing cramping and diarrhea with the recommended dosage.

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Replies to "This is interesting…gastro dr recommended 2 Zenpep (40,000) with each meal, equaling 6 per day. It..."
longslowprogress | @longslowprogress | Jun 17, 2022

ZenPep did not work for me. I tried several weeks on Creon With samples given to me by my doctor. Now I have a prescription for Creon, and will try it for several months. Initially, it seemed to help a lot. I have EPI found after taking a GiMap test. My amalyse level was 33 and my lipase and protease were also extremely low.
I hope the Creon is part of the MC solution, the Creon should definitely improve my ability to digest and derive the nutrients I need from my very very limited diet.

Wayne Pesky’s book and the blog are helpful and offer deep insight into MC.

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