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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: Oct 23 10:20am | Replies (3405)

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@danicandii

I know this is an old thread and I appreciate you sticking around and updating us. I have had a similar if not the exact same issue with SOB since late 2016. In 2017 I started seeing specialists about it after my GP suggested something was wrong but could not say what. I went to a pulmonologist who ran some breathing tests that showed everything normal except for my diaphragm muscles not working as they should. Because it was a muscle response issue, I was sent to a neurologist because the pulmonologist thought I had ALS. I was very young at the time and the neurologist couldn’t find any evidence of ALS in my muscle movements or blood work. From there I was kicked over to an asthma and allergy specialist, who found that I had neither asthma or allergies, but still prescribed nasal spray. After that, I had given up the search to find an answer and just try to live with it, until I came across your post. Thank you for the exercise recommendation. I am going to look into it and see if it helps my situation.

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Replies to "I know this is an old thread and I appreciate you sticking around and updating us...."

hi @danicandii, glad you found this forum. I know it's helped a lot of people and I hope you find useful information throughout the comments. It sounds like you've had most of the tests which all came back normal. Have you had bloodwork done at all, and do you know of any nutrient deficiencies?

Interesting about the diaphragm muscles. I've wondered that about myself. Maybe the diaphragm muscles aren't quite working properly. There still may be some benefit to seeing if you could do some kind of diaphragm exercises to see if that will help strengthen the muscles. Have you looked into the possibility of diaphragm exercises? Let me know what you might come across, I'd be interested in maybe trying something out for me.

Let me know if you have any questions about the Buteyko breathing exercises; they have definitely helped to keep my symptoms under control and I've learned to just breathe through my noses and not my mouth. That also seems to help out quite a bit.