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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Hi @anniepie, my Dr says that Arikayce is good to clear mac up for a while but like the other meds it often returns, unfortunatly. Yes I am on the big 3 daily, but apart from the QT interval its going well, I will keep an eye on my ECG like you. I hope your pills are not causing trouble. We are not far from each other,what part of Aussie are you in, hope aussie covid is improvng. We are in this together, which helps alot. Take care Heather
Replies to "Hi @anniepie, my Dr says that Arikayce is good to clear mac up for a while..."
Hi Heather @heathert -- sorry I missed this earlier post.
I'm in Brisbane in Queensland, Australia -- the sub-tropics.
Yes we are very close!
Covid19 is up and down here -- mostly it's now kept very low in about three-quarters of the states, including Queensland. But we are very strict on Covid in Queensland -- a lot like New Zealand really.
Victoria, a southern state, had a bad 2nd Wave for about 4 months last year but eventually succeeded in eliminating Covid in the community because they had hard lockdowns, lots of PCR testing (free of charge!), compulsory mask-wearing, state border closures, strict quarantines for 14 days for all arrivals and very strict enforcement of adherence for all these things.
Only New South Wales (NSW) has had a more 'relaxed, risk-taking' attitude than other states by comparison. It's run by a different political party that tends to value the economy more than older people. They are very good at mass testing, tracing and controlling Covid when it comes up -- SO FAR -- but they leave most things open and if you're older with health problems and catch Covid, that's just regarded as your bad luck.
But in other Australian states that have been much tougher with Covid controls, really our economy has often bounced back quicker than the NSW economy! New Zealand has found that too. Of course, there's no place in the world the economy hasn't been damaged at all.
But we all wish this pandemic would go away fast and we're really saddened for the UK, Europe and USA and other countries having a terrible time with Covid.
You take care also, please x
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Hi Annie sorry to hear your back on meds I’ve been in Arikayce since dec 16th I have MAC been diagnosed recently like around Aug how long were you on Arikayce if you don’t mind me asking. When you were taking Arikayce can you tell me some of your symptoms. Now that your on the big 3 which can your body tolerate better Arikayce or the big 3 I’m little Afraid after taking Arikayce I will have to do the same as you. If you could give me some feed back I would appreciate it I hope you feel better.