I have PN from my toes to my knees. I try to stay active like others mentioned above. Lately, I have found that my ankles are becoming very stiff and I feel tightness in my midfoot as well. I had ankle fusions on both feet a few years ago but my ankles feel stiffer than they did when I first got out of a cast. I was just curious if others with PN had stiffness in their ankle and/or tightness in the midfoot. Thanks.
I have PN in my right lower leg and also have stiffness and tightness across the mid foot, sometimes reaching to my big toe (especially) and other toes. I do ankle stretching exercises on a stair step every day. I’ve watched my actual ankle range of motion and I’ve come to the conclusion that the sensory information the damaged nerves are sending me is NOT accurate. Those nerves are yelling stiffness and tightness, but I actually have better range on the affected ankle, probably due to all that stretching! Massage does nothing for the feeling of tightness, compression hose is more for swelling. I really believe I am being hornswoggled by those damaged nerves. So, I try to ignore them and keep on with life!
I have PN in my right lower leg and also have stiffness and tightness across the mid foot, sometimes reaching to my big toe (especially) and other toes. I do ankle stretching exercises on a stair step every day. I’ve watched my actual ankle range of motion and I’ve come to the conclusion that the sensory information the damaged nerves are sending me is NOT accurate. Those nerves are yelling stiffness and tightness, but I actually have better range on the affected ankle, probably due to all that stretching! Massage does nothing for the feeling of tightness, compression hose is more for swelling. I really believe I am being hornswoggled by those damaged nerves. So, I try to ignore them and keep on with life!
Interesting. It goes along with what PT told me yesterday. They told me to keep doing the exercises they provided even though I don't think they are doing anything. They said that I am training my foot even though I may not be totally aware. Keep on!
Me again- re-read your reply and saw you were looking for the mesh top, I don’t see them under the men’s choices, but based on my daughter’s experience, Zappos is very forgiving about returns, so maybe if one of the styles suits your other needs, buy them and try them out. My daughter does a lot of back and forth as they order for their kids too, returns have been never a problem
They aren't very low cost- $69.99-99.99, but well worth it- very good quality of materials and workmanship. I looked at a lot of slippers, with PN the slip-on scuff style doesn't work as they'll start to slide off without you being aware due to the numbness. You need a slipper with a stiff back for the same reason, too many shoes have soft backs that become crushed down over time, then the sliding off can happen. The non-skid sole was important as my balance is not the best. I was afraid the sheepskin-type lining would be thick and hot, but it's not, just enough for soft comfort.
Hi my name is Sydney, I have Peripheral Neuropathy, Somedays go well that is to say I can forget about the discomfort. It comes back in the evening I have to remove my socks and some days I can't even put my feet under the Sheets & blankets. I feel at times like I'm walking on nails or pins and needles. The one drug which helps in a smaller way is Pregabalin at 400 mg. Which is a lot, I get dizzy and want to fall asleep. During the day I take 5 mg of Hydrocodone. I've tried oils and creams they help but they don't last very long, hours.
Hi my name is Sydney, I have Peripheral Neuropathy, Somedays go well that is to say I can forget about the discomfort. It comes back in the evening I have to remove my socks and some days I can't even put my feet under the Sheets & blankets. I feel at times like I'm walking on nails or pins and needles. The one drug which helps in a smaller way is Pregabalin at 400 mg. Which is a lot, I get dizzy and want to fall asleep. During the day I take 5 mg of Hydrocodone. I've tried oils and creams they help but they don't last very long, hours.
Good evening @mayosloke417. Welcome to Connect. Thank goodness for those "somedays" when you can forget about the discomfort of (PN) Peripheral Neuropathy. I understand about the dizzyness of Pregabalin. I ended up only able to use Gabapentin at nighttime because of the dizziness if I use it during the day.
Sydney, have you visited with a specialist or other clinician to evaluate and confirm your diagnosis? Did you have a skin biopsy or do you have the results of other nerve function tests? That might be helpful as you seek other medications.
You also mentioned using topicals and found them to be a little on the short side timewise. Have you explored medical cannabis at this point? Is it available to you where you live?
How long have you had PN?
May you be safe, protected, and free of inner and outer harm.
Chris
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
I was diagnosed with peripheral neuropathy after knee replacement surgery. I have tried PT, acupuncture, CBD oil, stimulation to my spine.
However, has anyone tried LDN for neuropathy?
Please if you have let me know.
I was diagnosed with peripheral neuropathy after knee replacement surgery. I have tried PT, acupuncture, CBD oil, stimulation to my spine.
However, has anyone tried LDN for neuropathy?
Please if you have let me know.
John thanks for your reply. The cause is unknown in my case. But I have constant tingling on legs and arms. Of course it is worse at night when trying to sleep. Sometimes I get a strong pain in my right leg near the knee and one in my thigh. I use a tens machine for the pain but the tingling and numbness doesn't stop. I also have restless legs and take requip for that along with tramadol. It helps with the rls but no the tingling and numbness.<br />
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I have burning and pins and needles pain in my feet and lower legs. I wear compression socks during the day. I take duloxetine and pregabilin for the pain everyn day. At night (worst time), I take 2 to1 combo 2.5 mg of THC and CBD. It relaxes me and takes the stress off my legs and I get a good 8 hrs. sleep. My Dr. said, "Whatever works."
Hi Beth, Sorry to hear you haven't found anything that gives you some relief for your tingling and burning feet. Have you seen the following discussions? Just wondering it others may have shared something that may help you also.
Hi, have you heard of Erythromelagia? Burning of feet, very sensitive to activity & hot weather. My feet turn red red after activity & being in the heat. Only relief so far is soaking only 5 min. In cool water. Not very common apparently .
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I have PN in my right lower leg and also have stiffness and tightness across the mid foot, sometimes reaching to my big toe (especially) and other toes. I do ankle stretching exercises on a stair step every day. I’ve watched my actual ankle range of motion and I’ve come to the conclusion that the sensory information the damaged nerves are sending me is NOT accurate. Those nerves are yelling stiffness and tightness, but I actually have better range on the affected ankle, probably due to all that stretching! Massage does nothing for the feeling of tightness, compression hose is more for swelling. I really believe I am being hornswoggled by those damaged nerves. So, I try to ignore them and keep on with life!
Interesting. It goes along with what PT told me yesterday. They told me to keep doing the exercises they provided even though I don't think they are doing anything. They said that I am training my foot even though I may not be totally aware. Keep on!
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1 ReactionThanks so much!
It was the mesh that attracted me.
BTW, are these all low cost Uggs? If so, are they the same quality?
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1 ReactionThey aren't very low cost- $69.99-99.99, but well worth it- very good quality of materials and workmanship. I looked at a lot of slippers, with PN the slip-on scuff style doesn't work as they'll start to slide off without you being aware due to the numbness. You need a slipper with a stiff back for the same reason, too many shoes have soft backs that become crushed down over time, then the sliding off can happen. The non-skid sole was important as my balance is not the best. I was afraid the sheepskin-type lining would be thick and hot, but it's not, just enough for soft comfort.
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Like -
Helpful -
Hug
2 ReactionsHi my name is Sydney, I have Peripheral Neuropathy, Somedays go well that is to say I can forget about the discomfort. It comes back in the evening I have to remove my socks and some days I can't even put my feet under the Sheets & blankets. I feel at times like I'm walking on nails or pins and needles. The one drug which helps in a smaller way is Pregabalin at 400 mg. Which is a lot, I get dizzy and want to fall asleep. During the day I take 5 mg of Hydrocodone. I've tried oils and creams they help but they don't last very long, hours.
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Like -
Helpful -
Hug
1 ReactionGood evening @mayosloke417. Welcome to Connect. Thank goodness for those "somedays" when you can forget about the discomfort of (PN) Peripheral Neuropathy. I understand about the dizzyness of Pregabalin. I ended up only able to use Gabapentin at nighttime because of the dizziness if I use it during the day.
Sydney, have you visited with a specialist or other clinician to evaluate and confirm your diagnosis? Did you have a skin biopsy or do you have the results of other nerve function tests? That might be helpful as you seek other medications.
You also mentioned using topicals and found them to be a little on the short side timewise. Have you explored medical cannabis at this point? Is it available to you where you live?
How long have you had PN?
May you be safe, protected, and free of inner and outer harm.
Chris
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Helpful -
Hug
1 ReactionI was diagnosed with peripheral neuropathy after knee replacement surgery. I have tried PT, acupuncture, CBD oil, stimulation to my spine.
However, has anyone tried LDN for neuropathy?
Please if you have let me know.
@sikocesca, There are a few discussions where members have shared their experience with Low Dose Naltrexone (LDN).
-- Low-Dose Naltrexone for Chronic Pain: https://connect.mayoclinic.org/discussion/low-dose-naltrexone-for-chronic-pain/
-- Success with low dose naltrexone for Autoimmune disorders: https://connect.mayoclinic.org/discussion/anyone-familiar-with-low-dose-naltrexone/
-- Anyone with experience using Low Dose Naltrexone?: https://connect.mayoclinic.org/discussion/anyone-with-experience-using-low-dose-naltrexone/
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2 ReactionsI have burning and pins and needles pain in my feet and lower legs. I wear compression socks during the day. I take duloxetine and pregabilin for the pain everyn day. At night (worst time), I take 2 to1 combo 2.5 mg of THC and CBD. It relaxes me and takes the stress off my legs and I get a good 8 hrs. sleep. My Dr. said, "Whatever works."
-
Like -
Helpful -
Hug
1 ReactionHi, have you heard of Erythromelagia? Burning of feet, very sensitive to activity & hot weather. My feet turn red red after activity & being in the heat. Only relief so far is soaking only 5 min. In cool water. Not very common apparently .