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Bone Health After Transplant

Transplants | Last Active: Mar 14, 2023 | Replies (35)

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@athenalee

Always remember, the squeaky wheel gets the grease…no squeaking, no grease. It’s the same for us patients. Our transplant departments are vested in keeping us healthy, but they’re not likely to reach out to us, they have a whole flock of new transplant patients to tend to. But, if we “squeak” they’ll be happy to help! 😁

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Replies to "Always remember, the squeaky wheel gets the grease…no squeaking, no grease. It’s the same for us..."

Hi Athenlee,

I was diagnosed with Osteoporosis six months after my kidney transplant that took place 12/15/22. Unfortunately I wasn't hospitalized in a large NYC hospital after my transplant when I was diagnosed with diverticulosis infection. I was in hopspital for three months. I also acquired a pelvic infection which I was treated for at the end of three months hospitalization.

I saw a orthopedic dr in NYC. After reviewing my MRI and Dexa scan I was diagnosed with osteoporosis. and two bulged disc. Dr want me to take Prolia shots. Heaven knows for. how long. I have heard some people remain on Prolia for years. This terrifies me.

After reading different website with patients having taken Prolia. OMG it scared me to death.

Drs now suggested a endocrinologist. I would like to find a specific endcrongologist in New Jersey who treats individuals who have had a kidney transplant. My Drs in NY want me to travel into NYC, IT's very expensive and NJ has to have specific drs who have treated kidney patients who have had a kidney transplant. Finding one is the key. Any help would be greatly appreciated. I even contacted Castle Connelly website and they could not provide this information.
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Would it be possible for anyone who has had a kidney transplant and taken medication for osteoporosis share their experience with the different kinds of medication they are taking and side effects. I understand everyone is different and no one will experience the same kinds of side effects. Thank you and much appreciate.