← Return to Bone Health After Transplant
Discussion
Transplants | Last Active: Mar 14, 2023 | Replies (35)
Comment receiving replies
Replies to "Always remember, the squeaky wheel gets the grease…no squeaking, no grease. It’s the same for us..."
Hi Athenlee,
I was diagnosed with Osteoporosis six months after my kidney transplant that took place 12/15/22. Unfortunately I wasn't hospitalized in a large NYC hospital after my transplant when I was diagnosed with diverticulosis infection. I was in hopspital for three months. I also acquired a pelvic infection which I was treated for at the end of three months hospitalization.
I saw a orthopedic dr in NYC. After reviewing my MRI and Dexa scan I was diagnosed with osteoporosis. and two bulged disc. Dr want me to take Prolia shots. Heaven knows for. how long. I have heard some people remain on Prolia for years. This terrifies me.
After reading different website with patients having taken Prolia. OMG it scared me to death.
Drs now suggested a endocrinologist. I would like to find a specific endcrongologist in New Jersey who treats individuals who have had a kidney transplant. My Drs in NY want me to travel into NYC, IT's very expensive and NJ has to have specific drs who have treated kidney patients who have had a kidney transplant. Finding one is the key. Any help would be greatly appreciated. I even contacted Castle Connelly website and they could not provide this information.
'
Would it be possible for anyone who has had a kidney transplant and taken medication for osteoporosis share their experience with the different kinds of medication they are taking and side effects. I understand everyone is different and no one will experience the same kinds of side effects. Thank you and much appreciate.