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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Hi all, just on to vent a bit! I’ve been feeling good lately and have my yearly CT scan scheduled for Wednesday afternoon. I was hoping for a slight improvement when I go, BUT, last night after I nebulized with my 7% I started coughing up blood. Not “bubbling up” amounts, but enough to be uncomfortable and annoying. Did my Aerobika this morning and coughed up barely a speck of blood. Little specks throughout today, but, when I started to neb this evening, it started again. So I didn’t finish and won’t use the Aerobika. Very annoying, but mostly disheartening. I was really hoping for a little bit of an improvement in my CT scan. I’ve already emailed my Dr to let him know. Thanks for listening.
Gina K
Replies to "Hi all, just on to vent a bit! I’ve been feeling good lately and have my..."
Gina - Scary for sure. I haven't had the blood/bloody mucus except when I was most ill, but the pulmonary nurse explained it as a sign of irritation, not of illness. Keep the positive thoughts!
Sue
@ginak I began seeing blood in my sputum and coughing up blood periodically a little over a year ago. It began with just a few threads when I coughed up some sputum and then began to be considerably more than that. I couldn't tell if it was coming from my lungs or draining from my sinuses. I still don't know for sure but had a complete ENT checkup which was clean. I was found to have pseudomonas and nocardia bacterias in my lungs as well as aspergillus fungus last October which could have contributed but again uncertain. I will say that while I was on my medication for the bacterias my bleeding stopped. I just began coughing up blood again a couple of weeks ago. It could be a reverse nose bleed. I have no idea. It just comes and goes but is very alarming when it happens. I nebulize 7% saline 2-3 times a day every day and did skip a treatment here and there while I was having the bloody sputum in hopes that would help. I don't have any comforting words to say except that you aren't alone and for me, I don't think it's at all serious. it's just another "thing" to write in my medical journal and keep an eye on. @lindam272
@ginak Hi I have had the bleeds also, just randomly, sometimes a few tblsp and sometimes teasps, just never know when its going to arrive. I had whooping cough a while ago and expected some bleeds because I was coughing so much, but I never bleed. I have had the bubbling up also, such a wierd feeling but it stops pretty quickly (half hour at most). My Dr has given me pills to stop bleeding in case I have alot of blood and said to ring the ambulance if there is more than 2 tblsp but as you say some is saliva so I would wait for more than 2 tblsp. Its awful but you kind of get used to it, its not very often. Take care Heather
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I had the same problem when I started using 7% saline. Doc changed me to 3% and never had the bleed again