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@jecheon

My husband (74) was diagnosed of LBD in March, 2021. The telltale symptoms of LBD, orthostatic hypotension and loss of smell, started about 25 years ago. Rem-sleep disorder, difficulty of word finding, voice softening, intolerance of
noise, and withdrawal followed. Then hallucinations started. Finally last spring his optomotrist at Mayo refer him to a neurologist who diagnosed my husband's LBD.

My husband is on Donepezil (generic Aricept) 10mg which greatly improved his daily functions and curtailed hallucinations, He has done a few other things which seem to improve his conditions: 1. daily chanting exercise (12 minutes) to strengthen his vocal cords and muscles around and inside of his mouth. 2. TMS (Transcranial magnetic stimulation) for depression, 3. Stopped statin drug. 4. daily walking (around 2 miles, 40 minutes). 5. Regular stretching (20 - 30 minutes, 3 - 4 times a week. 6. Singing (he has a wonderful singing voice), reading out loud and computer games
for words finding, attention and so on.

Diet-wise,
We cut out most sugar from our diet and reduced processed snacks (no chips, no cakes, donuts and all the good-bad stuff). We eat lots of vegetable and fruit and mostly whole grains. To our diet, we added mostly wild-caught fish, some chicken or turkey, little red-meat. We also consume quite a bit of eggs, two a day, and yogurt.

He is going to start a weekly speech therapy and is meeting a physical therapist to assess his needs.

So far he is doing okay mentally and physically. Despite scuffing up his shoes while walking, his gaits are steady and brisk. We are very grateful and hope to slow down the progression of LBD. We are also very grateful for the doctors and the scientists who are working hard to help us.

I don't know what helps or what doesn't. But, it feels good to know that I am learning and trying. Also I am very lucky
to have a friend who lost her husband to LBD about a year ago. Her knowledge and wisdom have been invaluable.

Thank you everyone for being there!!!

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Replies to "My husband (74) was diagnosed of LBD in March, 2021. The telltale symptoms of LBD, orthostatic..."

What a helpful and practical post, @jecheon. When do speech therapy and physical therapy start?

May I ask why you stopped the statin drug? My husband also has LBD and takes a statin daily.

After exhibiting symptoms of Parkinson’s (drooling, falling, etc.) that my mom and bro had, I began my neurological journey! After numerous dr. visits, scans, tests, I have finally been diagnosed with extra fluid on my brain with the possibility of a shunt relieving my symptoms! Hallelujah! Still waiting on powers that be to agree on this diagnosis and set up the procedure! What a blessing to finally have some hope! Hoping it can happen! Anyone else have this experience???