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Donna N (@donnan)

Looking for other pancreas only transplant recipients

Transplants | Last Active: Jan 21 5:10pm | Replies (42)

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@pamherman

Hi, thanks for writing back. EPI is Endocrine Pancreatic Insufficiency. I spent two years undiagnosed , it was horrible. I kept thinking I was so sick because of Kidneys. Well, my old endo figured it out. The type 1 for so long has damaged the pancreas part for digestion. Every time I eat, I have to take enzymes starting with the first bight to cover what I’m eating, kinda like insulin to food quantity. Without the pills I’m nearing death by toilet and throwing up violently. I am a professional equestrian and ended up leasing out my farm / house and business. I went thru a few Drs that said kidney disease doesn’t make you feel sick, which I know it depleted me a whole season of showing horses, I now get the whole picture and I wish that Dr had sent me for further testing. So another year, I’m like a skeleton and my Endo Dr. from Penn figured it out. I live in Va Beach and Chesapeake but went to Philly for Islet cell Transplant Clinical Trial in 2010 and 2011. Ok, I’m praying for Pancreas to heal my Type 1 but I know the EPI will now be here forever. God, to be able to ride, not hear those f….. beeps and alarms and noises that are always ringing even when they are not. Crap, I would settle for no gadgets within twenty feet of me. Mayo has really impressed me and I have never been there. I’m so over Dr’s and after seeing Dr. Jarmi’s video, I have my first app with him. Like meeting a celebrity. He was so cool on the video. Ok, some f….. alarm is now beeping. Let’s stay in touch. Pam Herman

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Replies to "Hi, thanks for writing back. EPI is Endocrine Pancreatic Insufficiency. I spent two years undiagnosed ,..."

Wow, bite not bight, alarm is real🤦🏻‍♀️

I add my welcome, Pam. Did you see this story about a patient of Dr. Jarmi's?
– Pancreas transplant to cure diabetes https://sharing.mayoclinic.org/2021/11/19/pancreas-transplant-to-cure-diabetes/

When do you go for your evaluation?

  Request Appointment