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Bone Health After Transplant

Transplants | Last Active: Mar 14, 2023 | Replies (35)

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@rosemarya

@hello1234, Being proactive about our care, is so important after our transplant when we move back home, and away from our Mayo base of care. I am grinning with delight to read that you took the advice and encouragement given in this discussion posted by @athenalee, and that you spoke with your transplant nurse who responded favorably to your request for a referral to an endocrinologist.

There are many of us, who like to shy away from making requests of our medical teams. Perhaps we don't want to be a bother, or feel that they are just too busy, or that we are simply not accustomed to doing that. Now that you have reached out of your comfort zone, how does it make you feel? How did you bring up the request when you were uncertain? What would you say to someone who is hesitant to reach out?

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Replies to "@hello1234, Being proactive about our care, is so important after our transplant when we move back..."

@rosemarya You hit the nail on the head!! 😊 I normally feel like I don't want to be a bother to my incredibly busy transplant team. I feel so grateful for them literally saving my life, I feel like I am being too greedy asking for one more thing. But after @athenalee encouraged me to reach out and just ask, I felt wonderful when my nurse told me it was not a problem. Stepping out of my comfort zone was definitely a positive thing! (My video consultation with the doctor is this coming Monday). The support, friendship, guidance and information that I receive on Connect each day has been invaluable to me. It feels like a family on Connect...my adopted transplant family!!! ❤❤❤