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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: 5 days ago | Replies (3422)

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@gabrielm

@tahiristan, thank you for sharing your story! Have any doctors given their opinion on if they believe the conditions you mentioned might be a cause or contributor to the breathing problem?

I wonder if the lowes incident might’ve trigger the asthma somehow and it’s still affected by it.

Have you looked into Buteyko breathing method? That’s the method I used early on and still use which has helped to keep my symptoms under control.

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Replies to "@tahiristan, thank you for sharing your story! Have any doctors given their opinion on if they..."

Hi Gabe,

well 8 years ago, I didn't get much of an answer from Doctors. Fast forward to today, I am having a hard time finding a doctor. They're all so busy. I do have a SLP, so that's nice and I am seeing her again in 2 weeks. So it's not Asthma. I had asthma as a teen/child and when I lost over 100 lbs, my asthma pretty much disappeared. The reason it's not asthma is three fold: 1) inhalers don't work, they make me shaky but that's it. 2) my tightness is always in my throat and I struggle to inhale, whereas Asthma is a struggle to exhale and it's in the chest. 3) I have monitored my Oxygen for over 2 months and not once has it gone below 90. Plus this breathless feeling is constant, that's not Asthma.

I was looking into that specific breathing technique but as I started doing it, it made my symptoms worse. so I will have to try again, but right now it's the worst it's been since 2013. The lumber definitely triggered it but I can't help but wonder if is Psychological.

I want to add that I have Dystonia too. My Dystonia is mostly in my eyelids but it can also be triggered by misuse of certain muscles (like abdomen spasms, or writer's cramp). I saw an SLP 3 weeks ago and she did a Laryngoscopy. I am just upset because when she did that, I was having mild symptom day (just my luck eh?). She said her ENT said that there was no visible Paradoxical Vocal Fold Movement (or Vocal Cord Dysfunction). She then mentioned it could be related to my Dystonia but why would it come on suddenly after that very specific event? Before that, I was a big runner. I would run 4-6 miles 4X a week and never feel breathless. I miss those days. My Dystonia symptoms started in childhood/teens but I went undiagnosed most of my life. It sucks because running, hiking, climbing is my life. It makes me feel better than anything else does.

Anyway, I want to thank you for starting this thread. I looked into CrowdMed and I plan to post my issue there. Did you have any luck on that?

Tahir