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DiscussionOne step forward, two steps back. My vasovagal nerve
Heart & Blood Health | Last Active: Jan 15, 2022 | Replies (31)Comment receiving replies
Replies to "Hello @artist01 and @kilh I am so sorry to hear of your troubles. I had about..."
@tsc and @kilh Oh, it's so good to receive your message, Teri. I'm very happy you don't have this Vasovagul situation now. Good for you!
I also have GCA, as well as Crohns, OLP, etc., all autoimmune diseases. The serious issues of passing out began at about the same time GCA and Crohns struck 3 years ago. I was hospitalized bc of loss of vision in my right eye, and had 1000 units Prednisone by I.V. for 3 days, then tapered Prednisone for 2 years. A neurologist put me on weekly Actemra injections (stopped Prednisone) at the 2-year point, and I currently have Actemra injections every 2 weeks, bc the GCA is less severe now.
When I was on the huge doses of Prednisone I also developed Diabetes, yet another autoimmune disease.
I had insulin injections for 2 years, but I've conquered that one with diet and exercise!
(and no Prednisone).
I'm grateful for your reading and YouTube suggestions and will certainly check them out. I do an awful lot of research 🙃 on all this stuff I've got, but the doctors just tell me I'm a very complex case, and they just try to manage it. (!!!!!)
Thanks again, Teri.
Hugs and good wishes. Laurie