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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
Liver Cancer | Last Active: Oct 2 4:33pm | Replies (219)Comment receiving replies
Hello @tball3748 and welcome to Mayo Clinic Connect. I appreciate you sharing your journey with cholangiocarcinomas. We have other members who have mentioned Dr. Smoot at Mayo and they all seem quite pleased with his work.
From what you posted it sounds like it will be another month before you have an MRI scan to see if the tumor has shrunk. Is my understanding correct?
Have you tolerated the nightly chemo well? Any side effects?
Replies to "Hello @tball3748 and welcome to Mayo Clinic Connect. I appreciate you sharing your journey with cholangiocarcinomas...."
hi tball I was just diagnosed in November and would like to stay in touch @wjdemarco
Yes I’m waiting for my next scan. I had done the gem/Cis chemo Sept - Nov then I was approved to start a targeted therapy called Pemazyre since I did the genetic testing and they found I had the FGFR2 mutation. 30% chance that this will shrink my tumor, so I figured, stay home, take a daily pill and get odds better than winning the lottery….why not, right?
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Yes, 4 weeks or so. Pemazyre hasn’t been as bad as I thought it would be. Dry eyes & mouth mostly. Now my phosphorus is going too high, so now have to watch my diet more so and taking a phosphorus binder. We’ll see how that works. I do miss chocolate & peanut butter though!