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Caregiver to cousin testing for liver transplant: Can I get support?
Caregivers | Last Active: May 15, 2022 | Replies (19)Comment receiving replies
Howdy, The evaluation wrapped up on Monday without a definitive diagnosis. The committee has approved her for the “inactive list”. More tests will take her back to Mayo on Monday for the week. Cancer of the bile ducts has not been “scientifically confirmed” but the tumors are growing fast. My husband had hip surgery 2 months ago and is now facing rotator cuff surgery. She may hire someone to replace me, but she is overwhelmed by the undiagnosed ailment. My heart aches that no one else is stepping up to be her primary caregiver.
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Update: cousin received a new liver 4/20. Am caregiving a rapidly improving recipient. On Day 21, she’ll be released from Clinic! My constant urging that she ask for friends to fly to Phoenix to help caregive going forward has worked. I get to go home after 3 weeks & resume my old life. My cousin starts building her new life. I am exhausted. The caregiver is a man band. I learned to expect breaks and make them happen. Sympathy from supporters is the open door to asking for breaks from the constant worry, lack of sleep. Advocate for relief in caregiving!!!