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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@brigby

@rits Very well explained. I agree. I take Budesonide 2x daily as an inhalant, through my sinus cleansing device called a “Navage.” I hate that I must resort to it, but I suffer in my sinuses, and then my lungs, if I don’t comply. Which mycobacterium sub-species do you have? (I culture m. Abscessus, MAC, MAI.) I also regularly culture Acintobacter and M. Abscessus in my sinuses.

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Replies to "@rits Very well explained. I agree. I take Budesonide 2x daily as an inhalant, through my..."
rits | @rits | May 12, 2020

Hi Brenda. I HAD MAC and pseudomonas and klebsiella also showed up in my sputum samples a couple if times. I also have had different fungi show up. I say HAD because none of the bacteria have shown up since last June. (Yay!) I have a telemedicine appointment with my specialist Friday morning and I hope she will give the word to stop the azithromycin and ethambutol I have been taking for 13 months. I currently do have candida fungi and some staph.

Wow. You have so many kinds of bugs! And in both your sinuses and lungs! Good grief. I hope antibiotics work to kill the darn things.

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