Hip revision due to metal on metal ions.

How has the PT affected you? Any relief from the pain at all? Last year I was having really bad pain and spasms, and the daily stretches I learned seemed to help over time - now if I quit them for a few days, I find myself flying out of bed with muscle spasms in my legs. Good reminder that fitness isn't just a one time thing.
Do you and the PT have a plan for you to keep stretching and exercising once the formal sessions are over?
Sue

Just started PT. I’ll incorporate them into my daily routine especially if they work.

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I had a rev. almost 1 year ago to the day. I had the original in ‘04…so in 16 yrs I never had a blood test. It was never mentioned. I woke up 1 day & couldn’t walk, in bed for a week…(I’ve posted this b4). Went directly to Ortho, 1st thing they did was test for metal (positive of course). He said since the rev., all was good, no more metal. However, in release papers I found some couple months three months later orders for another blood test… I did not even know they were there or that I was supposed to have it tested again. However I did go back four months later and had it tested by just another doctor at my PCP and I just found out last week that there was still metal in my blood. My biggest issue is mental I don’t even remember having that second test done with my PCP.
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However, I don’t think I ever mentioned that the Doctor Who did the first implant was not the same one who did the revision the Doctor Who did the revision left so when I went back it was a different doctor but told me the same thing. Some days are good some not so much as seems like it comes in waves.
🙁

I'm sorry to hear that you are still suffering multiple issues, I assume the docs not sure how they all tie together, or what the catalyst was that started it all, since it has been so long for you.
When I had continued problems after my metal hips were replaced, it was a persistent primary care provider that helped me put the pieces together.
Who have you been seeing? Do you have an option to see a group, where the primary and specialists work together?
Sue

I did not have one Dr. at the time…in fact the Dr I saw constantly was a GI Dr….in fact the one who told me she thought all my gut issues could be due to my hip!

Me again…I remember you saying something about thyroid…I think I’m doing the same. I was taking NP 20 (?) after rev., my hair was coming out by handfuls…I took myself off. But I was diagnosed with Hashimoto’s & or Graves as well. I’ve noticed recently my fingertips are going numb again…maybe an Endocrinologist is in order? Seems there’s something I’m forgetting…imagine that…HA

I had both hips done with metal on metal hips in 2007 and 2009. Since I was younger I was told they would last longer.. Due to tissue destruction and pain, the 2009 metal on metal device was replaced/revised in 2015. However , I have always had low levels of cobalt and chromium in blood.
However, recently my cobalt and chromium levels have more than tripled and are in the toxic level. I am not thrilled about a 4th hip replacement surgery to remove the defective hip replacement device causing cobalt and chromium poisoning as I have had numerous serious medical issues and recent major medical surgeries this past year. Also having surgery during this covid epidemic is not appealing. Has anyone tried chelation with N acetyl cystein to remove the cobalt and chromium. Does anyone know a medical toxicologist familiar with this issue. My orthopedist said he has seen mixed results using N acetyl cysteine?

I took a look. It sounds like results so far are extremely limited - you can take a look here.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7183002/

My concern is whether chelation therapy is effective when you are already at a toxic level and having medical issues. My metal on metal implants were replaced when my metal levels reached toxic levels, less than 5 years after the initial surgeries. 10 years later, I still have some residual effects from the damage.

Also, I have had 4 successful surgeries during Covid without incident, I would not consider it a reason for deferring surgery or subsequent PT.

Sue

Thank you Sue for your prompt reply. In 2020 at beginning of covid pandemic I had a triple coronary bypass even though I had almost no symptoms but cardiologist recommended it. 2 wks post surgery I was back in hospital with sepsis, likely from the surgery. I had a long difficult recovery , 2 more hospitalizations and then home with IV's and difficulty getting rid of the staph infection in blood. Consequently I am wary of having another major surgery after having 3 hip surgeries and a bypass and covid still rampant. . But you are correct. Waiting too long may be bad also It is hard for me to weigh the risk/benefits of having another hip replacement. Also my left hip is the one that needs the revision but I have chronic rt knee pain from an injury and am worried about walking after the hip surgery. I wish there was more data and research on if chelation works to remove the cobald and chromium. Stay safe and healthy

Has anyone tried chelation first to remove the excessive high levels of cobalt and chromium in blood. ? I have had 3 hip surgeries. One in 2007 rt hip and another in 2009 left hip to put in metal on metal total hip implants. In 2015 the surgeon replaced the rt. Metal implant which was damaging tissue . Now my left hip MOM implant is likely causing a sudden increase in cobalt and chromium levels and likely I will need to get it out. That will be a total of 4 hip surgeries. My big concern is that my right knee gives me a great deal of pain and I limp due to complete root tear of rt knee meniscus. They tell me I should get a right knee replacement also, This is a lot of surgeries and I just had coronary bypass surgery in 2020, So if anyone knows anything about chelation please advise. Stay safe and healthy