Hi Jennifer and Colleen,
Thank you very much for your reply, it means a lot to me. Yes, I know it has been a while. After I posted here, I then had 2 or 3 weeks with the symptoms in a more bearable state and I tried to just forget about all this. But since mid December it all came back and I have been suffering a lot, physically and emotionally, as it has been one year and two months and I'm already a mess emotionally. Can't function with this problem.
Replying to your messages, first of all, my first post is just a small resume of my problem and all the stages I've been through, or else the post would be too long and I would risk that no one would ever read it.
@colleenyoung Yes, I have second and third opinion. The other two ENT's that I visited say that the theory of permanent damage does not seem to make much sense for them. But they were in a hurry to call for the next patient, so they didn't investigate any further to find answers.
@jenniferhunter Thanks for your advice. I don't think my situation could improve with MFR but I will have a look at it.
I already did a few exams that came out all clear. CT scan, MRI, neck ultrasound and endoscopy.
Maybe that cyst is the result of trauma from the foreign body, as if the body rejected or absorbed the foreign body and the result is that cyst. Maybe inside the cyst there is a tiny piece of foreign body that is not visible in the images of the exams for some reason. Or maybe I damaged to the mucosa.
I'm so tired of all this. I'm the father of 3 small girls, one with 9 and two with 2 (twins) and they are the only reason why I keep struggling, but I just feel like giving up. The last 14 months were a constant nightmare and I can't deal with the idea that I might have to live like this forever.
When there is damage to the cartilage, is it possible to confirm the damage by analysing the cartilage and look for necrosis, calcification, fibrosis, etc?
As a last note, Colleen, I contacted @billcomiskey by private message and he was very kind to answer my question about the epiglottis. He says that after the wound healed he never had any pain or discomfort. That's one more reason why I doubt my epiglottis is damaged. If this was the case, after 14 months, the symptoms should have subsided already. The pain and discomfort that I have in that area might have a different origin, like the cyst or damage to the mucosa.
Thanks again. This time I promise I will be around and reply very fast.
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@anthonymg Anthony, I had a bump on my inner lip that looked very much like the bump in your picture. Mine was from accidentally biting my lip hard a few times (enough to puncture it) and it developed scar tissue and got even bigger and became what they call a fibroma. Of course, since it was in the way, I would catch it and bite it every few months or so. I lived with that probably at least ten years and just tried to avoid biting into it. I was going through some major dental work with an oral surgeon in the last couple years for dental implants and I had him remove it. That likely won't happen again because the new front teeth don't make contact with the lowers which is to prevent putting pressure on the implants.
Honestly my teeth have been a problem most of my life. I was only 9 when I fell on my face and broke them, and for most of my life after that, I had ugly teeth that I couldn't hide from anyone and I had deep fears of dentists and doctors. The trauma from that event caused a cascade of stainless steel caps, braces, bonding, root canals, crowns, bridgework to replace crowns, oral surgery for failed root canals, extractions and dental implants, and now for the first time, I have front teeth that look nice. It took 55 years, and now I am free of those old problems. No one can tell that my teeth were made in a lab. I know, and I actually worked in that same dental lab years ago, and it's OK. They are not exactly the natural teeth I had, and no one can bring them back. The new ones are just different. I spent some time looking at other people's teeth and noticing how very different and imperfect they can be. I had perceived other people as having nice teeth and mine were always ugly, and I had to tell myself it was OK to have different teeth. They do look nice.
Perfection is something that is hard to define. Most people are somewhat asymmetrical and even internally there can be differences in placement of organs and vessels and nerves which is very common. It's when we tell ourselves that we are supposed to be perfect that the stress begins. What if we just told ourselves it is OK to be imperfect? Doctors are looking for the things that are abnormal and could cause disease, but there are a lot of benign things they will ignore because it doesn't cause a problem.
I would ask why you don't think myofascial release could help you? Here is my thinking.. when a person is stressed (myself included) everything tightens up as we clench or brace against something. It becomes a habit. My neck and shoulders get tight. I also had a whiplash injury years ago which caused the bracing behavior, and eventually it caused a spine problem that needed surgery.
Was I scared? You bet! But I got through it and learned from it and learned how to beat my fears. My physical therapist was doing myofascial release because of my tight neck and shoulders at the time the spine problem was becoming evident. It helped make my recovery from spine surgery better because I was in a better condition going into surgery. After surgery, my swallowing was painful and difficult for a few weeks because they had to go behind my throat and windpipe to get to my spine. I just had to be careful swallowing, and when I was recovered enough, myofascial release work helped loosen up my neck again and loosen the scar tissue that formed because of surgery. I still do this because things tend to tighten up if left alone. I have learned from my experience that any slight alignment issues of the spine and skull in combination with neck muscle spasms can generate a lot of pain. I can get pain across the front of my throat, tingling in my face, jaw pain, headaches, neck and shoulder pain, etc if a muscle spasm starts turning a vertebrae in my neck or tightening my jaw. Fascial work can help the tightness and muscle spasms that are causing the problems. Since my spine surgery, these issues have calmed down, and I have a lot of body awareness so when something starts, I can lay down and check my spine alignment with my hands. I have learned that from my physical therapist and also some things to do to get back to realignment which stops the pain. The pain happens when muscles get stretched because they are pulled out of alignment by another opposing muscle. Sometimes I get tightness across the front of my throat from this, and my PT can always fix that. The key to staying pain free for me, is to try to maintain good body and posture alignment and that is very important for my neck to help to prevent future spine issues. (See response continued in the next message.)