Anyone taken Evenity (romosozumab) for Osteoporosis?

Just adding that anytime bone turnover is suppressed, bone quality decreases over time, and microcracks become a problem, leading to atypical fractures. This is mainly an issue with biphosphanates and Prolia. Evenity mainly grows new bone, but suppresses turnover to a lesser degree. Since it is only taken for one year, fractures are probably less of an issue. However it is very new on the market. Evenity's main function is to grow new, quality bone.

Hi. This is an update to my prior decision to take Prolia vs Evenity. I was supposed to begin in October, but due to a mixup my doctor never received the drug. Frankly I was a little relieved! Maybe it was a blessing in disguise. I’m encouraged when I read about little to no side effects from Evenity and perhaps will shift gears in that direction.

Sounds good about Evenity!

I have had two injections of Evenity. My hair has started thinning and it is breaking off around my face. Has anyone else had this happen?

I am interested in information about Forteo treatment after the 12 months of Evenity are complete. There seem to be many options but I am especially interested in Forteo, which continues to build bones. If anyone has experience with Forteo after Evenity, please respond. Also if anyone knows a doc who is knowledgeable about this option, please let me know.

I have been taking Evenity for 7 months. The only side effect has been a slight ache at injection site occasionally. Not enough to stop me from normal activity or fitness exercises.

I have heard, but don't know for certain, that Evenity can follow Forteo (or Tymlos) but not the other way around. It might have been because Evenity "turbocharges" growth so there is less left for the others to do, but not sure. If your doc says you can follow your Evenity with Forteo, please let us know!

I just had my first Evenity shots yesterday in each arm. Hours later I felt itching at the injection sites, as if I had bug bites. Today, I am fine. I had no swelling at all. Did your itching last long and has this happened each time you have had the injections? Thanks.

The doctors still seem quite concerned about recommending Forteo or Tymlos to anyone who had radiation. And I had IORT-a bit more of a limited and more targeted radiation done at the time of the lumptecomy so you would think they would be more open to the idea of trying Forteo or Tymlos. I guess there are different risks with all the medications and one has to weigh all the risks/benefits. I got three different opinions when it comes to Evenity from cardiologists. One said go for it, another said only if there are no other options, the third said dont take it. Given this, I have no idea what the best path forward is...

Yes people who have had radiation are listed as one of the groups of concern with Tymlos. I had treatment for breast cancer 2015-20 and tests show high risk so I am concerned about tiny metastases that could perhaps grow on Tymlos. I am doing a year to start and will see how it goes. Even 6 months helps- that is when the most bone growth happens. I believe bone cancer risk depended on dose and duration.

ps I asked three cardiologists and two endocrinologists on Evenity versus Tymlos (I had an episode of afib with full dose of Tymlos) and they all had different answers. Since Tymlos is not as new, and I can follow it with Evenity, I went with my gut and started it low and kept going.