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guderianj (@guderianj)

Hemiplegic migraine

Brain & Nervous System | Last Active: Jan 4 10:40am | Replies (5)

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@hopeful33250

Hello @guderianj and welcome to Mayo Clinic Connect. I appreciate your post about hemiplegic migraine. We do have other members on Connect who have spoken about this such as @azza1 and @gtownsend. I hope they will join this discussion.

I looked on Mayo Clinic's website and see that there is a Clinical Trial for medication for these types of migraines. Here is a link to that Clinical Trial https://www.mayo.edu/research/clinical-trials/cls-20305353?_ga=2.127727566.273405985.1641077529-1603362872.1610991398, The Clinical Trial is closed now.

As you are comfortable doing so, please share a bit more about your history of migraines. Have you had auras and one-side weakness and/or paralysis? How long do your migraines generally last? What type of meds are you taking?

Here is a link to a video by a Mayo neurologist, discussing his history of migraines that you might find interesting.

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Replies to "Hello @guderianj and welcome to Mayo Clinic Connect. I appreciate your post about hemiplegic migraine. We..."

Thank you, I will review everything. I have had “typical” migraines with aura, nausea, sound and light sinsitivity etc. daily my entire life. They are well managed with topomax. My hemiplegic migraines presents with left sided numbness, weakness, neurological confusion, and fatigue. I am taking verapamil twice aday. 40mg quick release in the am and 120mg slow release in the evening. Along with the topomax 125mg I was already taking. My episodes last anywhere from hours to weeks. Depending on cause. I have no auras (visual disturbance in a glittering blob)

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