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After failed radiation and Lupron what comes next?

Prostate Cancer | Last Active: Jan 7, 2022 | Replies (18)

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@seabiscuit

Thanks for your input. I guess basically thats all i am doing, buying time. Just gets me they can't stop a tumor thats so small. I have been reading about mayo clinic. Considering going there for second opinion. Thing is doctors are so sensitive and get upset when you seek treatment elsewhere. Thats another story.

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Replies to "Thanks for your input. I guess basically thats all i am doing, buying time. Just gets..."

Just my thought, the doctor's sensitivity about you seeking treatment elsewhere is their problem, not your....

After surgery in 2014, I had BCR in Sep 15. I followed my surgeon's recommendation and did SRT. AT that time, combining short term ADT, say six months, with the SRT was starting to emerge in various studies as a way to increase the effectiveness of SRT, Mayo had data that indicated more often than not, the spread of PCa was not confined to the prostate bed but included the pelvic lymph nodes.

When I asked my surgeon and radiologist about including ADT and radiating the PLNS too, they dismissed the data as not having long term results, therefore not ready for use in clinical practice. When the SRT failed I decided then and there that my needs were first, their egos 2nd.

I did my research, went to Mayo, agreed on a plan and my medical team here in Kansas City carried out that plan locally.

I did consult for a 2nd opinion here in KC before going to Mayo. The individual was head of the urology department, had an impressive resume and is now head of a major national urology organization. When I laid out my clinical history, cited various studies and sked what he thought, he dismissed my thoughts and said he would only do the standard of care.

Well, I thanked him and said we are not compatible, you are not interested in joint medical decision making, so you're not the right guy for my medical team. I shudder to think where I would be today had I worried about his feelings.

Kevin