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DiscussionStiff Person Syndrome: Want to connect with others
Brain & Nervous System | Last Active: 4 days ago | Replies (211)Comment receiving replies
Hmmm... Have you thought about reaching out to the maker of the gammaglobulin? Our neurologist has told us if we have any insurance issues (which we have in the past) that they may be able to help. It's a tough situation because of how expensive it is. Those of us who need it know what it does, though. I hope you are able to find someone who is able to help your daughter get the medicine. It may be worth a try to contact the company.
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thank you her insurance pays for it at an infusion center this is more about how a rehab center is reimbursed for the care patients receieve in their facility, the cost of the IVIG would come out of the money they receive from Medicare to cover her during her stay and it wouldn't be cost effective for them if they had to cover the IVIG treatments. It is a matter of how things are paid for in a rehab setting. Sorry this is probably confusing I know it is to me. Just wondering if anyone else ran into this same situation and how they may have solved it i.e. changing treatment modality while in rehab or awareness of a rehab that is willing to take on the cost of IVIG