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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Apr 27 2:40pm | Replies (197)
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@krb65

I believe it is an insurance issue with the rehab facilities, The way it has been explained to me is a rehab facility is a bundled service so all of your care costs comes out of the set payment, therefore IVIG is too expensive for the rehab to include in their cost of care, it would not be cost effective for them.

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franksgirl210 | @franksgirl210 | Jan 2, 2022

Hmmm... Have you thought about reaching out to the maker of the gammaglobulin? Our neurologist has told us if we have any insurance issues (which we have in the past) that they may be able to help. It's a tough situation because of how expensive it is. Those of us who need it know what it does, though. I hope you are able to find someone who is able to help your daughter get the medicine. It may be worth a try to contact the company.

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